After being admitted to hospice for a life-threatening seizure disorder, Kellen’s parents had exhausted all treatment options. During a recent hospitalization Kellen was accepted to take part in a potentially lifesaving medical trail at New York University Medical Center. In order to take part in the medical trail Kellen would have to travel to New York City almost once a month to receive medication and be evaluated by doctors.
Traveling safely on a commercial flight for Kellen would be difficult because of his overall poor health, seizures while in public, the need to be able to move freely around the cabin to administer his medications, complications in navigating airport security, his cumbersome medical equipment, lengthy travel time and the financial burden of associated expenses. The best solution for Kellen was to find a organization that could provide a private flight option to get him to the medical trail. In discussing their concerns with Jennifer Sosensky, a social worker at Duke Medical Center, she suggested Children’s Flight of Hope as a possible solution.
Children’s Flight of Hope was the perfect organization to help alleviate the stress and remove the burden of getting Kellen from Greensboro, North Carolina to New York University Medical Center. Over the last few months we have been following Kellen and his family as they travel with Children’s Flight of Hope. Stay tuned for more about Kellen’s story.